Life As We Know It: A Father, a Family, and an Exceptional Child

Amazon.com Price: $16.95 (as of 10/10/2019 22:41 PST- Details)

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Description

When Jamie Bérubé used to be born with Down syndrome in 1991, he used to be instantly subject to the medical procedures, insurance guidelines, policies, and representations that surround each and every child our society designates as disabled.  On this wrenching yet in the end inspiring book, Jamie’s father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person somewhat than as a medical, genetic, or social problem.
When Michael Berube’s second son Jamie used to be born with Down syndrome, life as he had known it used to be gone. abstract questions the successful academic and writer had been too busy to take into consideration were thrust before him. Berube tells how he and his wife came to know this astonishing new person as their son, a person like their other son and yet who, to the world, used to be not a person but the syndrome itself. Berube intersperses the story of Jamie’s development with a critical analysis of society’s response to disability, the inadequacies of American health care, and a discussion of such issues as eugenics and the priority society gives to budgeting for the disabled.

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